About Us
Our Team
✔ Founder and Executive Director: of The Silent Bleed
✔ Development Officer: Focuses on fundraising and donor relations.
✔ Volunteer Coordinator: Recruits, trains, and manages volunteers for various tasks.
✔ Program Manager: Oversees specific projects or initiatives within the charity.
After one of his last half-marathons with his son in 2007
Debbie
Administrative Assistant:
Provides support with office tasks, intergration with our followers and organizational operations.
Marybeth Sullivan Tello
Volunteer
Designer of our logo, Marybeth had also written for us. Unfortunately SS took her from us
Amanda Fearn
Co-founder & Chair
Freelance writer and blogger, Amanda is not medically trained but she is dedicated to getting as many people as clued up about Superficial Siderosis as possible.
Syd Fearn Roberts
Event Coordinator:
Plans and executes fundraising events and activities.
Janice Toovey
Volunteer
Managing 'the Friends of Superficial Siderosis Sufferers Unite group on Facebook as well as coming up with our Charity name
Sabbir Alam
Website design manager
Responsible for Ithe website’s overall design, development, and maintenance. This includes ensuring that the website is visually appealing, easy to navigate, and informative for visitors. They also oversee the website’s content, ensuring it is up-to-date and relevant.
Louise Moore
Finance Manager:
Handles budgeting, financial reporting, and compliance within the charity.
Paul Toovey
Volunteer
With us since the beginning. He promotes awareness of SS where ever he goes!
Janice Toovey - Creator of our charity group name: Superficial Siderosis - The Silent Bleed
"Paul's doctors in London always said the bleed lies silent in the body. They don't even know if it's been present from birth, major surgery in 2001 or a fall in the playground (age eight) when he had his first stroke, so Paul's bleed is definitely silent."