Louise and I discussed getting together to create a charity for superficial siderosis a long time ago. We were both sufferers and wanted more attention with regard to finding ways to deal with the disease.

 

Unfortunately, we never got the chance as she died in 2014. She did however get a website started and I am continuing our mission until I pass away when another will pick up where I left off.

Until then, I shall carry the torch xx

​

Jason Roberts,

Founder,

The Silent Bleed