What you can do
Together, we're not just facing the future, we're changing it
Whether you were diagnosed last week or two years ago, we know that living with Superficial Siderosis can be tough.
Hospital appointments, handling medication, juggling family responsibilities and sorting out finances. It's easy to feel helpless.
The past few years have seen exciting advances in awareness, diagnosis and treatment of Superficial Siderosis but there is still some way to go
As a UK-registered charity, we're determined to help people from around the world to fight back. Your contribution, however large or small, makes a difference.
Be part of the resistance
fundraise
Fundraising should be fun. Think about what your strengths are and what you'd like to have a go at. Whether it's a fun run, a tea party or a music evening, get your thinking cap on, get a few friends together, come up with a few ideas and then get the ball rolling. We're here to support you.
charity cards
Bright, unique and beautiful quality, you won't find these cards in the shops and 10% from all sales go straight to us. Click on Anne-Marie's link below, buy stunning cards for friends and family and raise money for research. It's that easy. Don't forget to enter code Silent18 at the checkout.
ask
Our Q&A with Dr Levy gives you access to a valuable source of information. At the forefront of research and the deferiprone pioneer, he has unrivalled knowledge of Superficial Siderosis and its treatment. Browse the Ask a Specialist pages to find out more about diagnosis, medication and symptoms or do a search using the box in the header. There's also an informative webinar with Dr Levy to get you started.